The Matthew DeGori Lowe Syndrome Foundation has been organized to fund medical research and health related programs associated with Lowe Syndrome, LS (also known as OCRL – Oculo Cerebro Renal Syndrome). This genetic disease affects the eyes, kidneys, brain, and muscle tone. Developmental delays and mental impairment are also associated with LS. Lowe Syndrome is a terminal illness in which there is no known cure and treatment is symptomatic. There is very little available funding for research so I ask your help in making a donation today.

The foundation receives no funding from agencies such as United Way, nor any funding from the US government. The Matthew DeGori Lowe Syndrome Foundation is an all volunteer organization. No monies received are used for salaries. Currently there are several critical research projects in progress that require significant funding. These research projects will hopefully lead to effective treatments and perhaps someday a cure for this dreadful disease.

The Matthew DeGori Lowe Syndrome Foundation is recognized by the US Internal Revenue Service as a public charity and as a section 501(c) 3 non-profit organization. The federal tax ID number is 80-0109430. Donations are tax deductible as to the extent provided by the law. We would be glad to provide any further information about our organization upon request.